May was a busy blur of book talks and presentations. While they’re still happening virtually, life does seem to be opening up. Hopefully, soon more of these will happen in person!
One of my favorite audiences to speak to are the parents of young children. Earlier this month I had a great time visiting and sharing with my friend and former colleague Ji Wang’s Saturday morning PTA Wellness group at the elementary school where she is principal. The sign above hangs on the fence right next to their parent drop off/pick-up circle. How clever is that?
Here’s a quick excerpt from my presentation:
If you’re interested in setting up a presentation, book talk, or class for your school or parenting group, I’d love to hear from you! Soon-to-be and new parents, it’s never too early to learn about one of the greatest gifts you’ll every give your child.
Book talk on THE INVISIBLE TOOLBOX is up for auction!
“Bid on once-in-a-lifetime opportunities to bring acclaimed and engaging authors on virtual visits to all the places that readers gather in your life!
Look for opportunities for facilitated discussions, readings, workshops, and demonstrations by a remarkable collection of authors to enrich your next book club, family gathering, or loved one’s classroom!”
Words Alive, a San Diego literacy nonprofit, connects children, teens, and families to the power of reading.
In support of their important work promoting literacy, I’m thrilled to offer a book talk on The Invisible Toolbox: The Power of Reading to Your Child from Birth to Adolescence. Find out why reading to your child is one of the greatest gifts a parent can give.
Because my talk will take place over Zoom, anyone can bid via silent auction.
Bid now and throughout the month of October and enrich your book club, classroom, or parenting group with a book talk on The Invisible Toolbox. Learn why reading to your child is one of the greatest gifts a parent can give!
Over 40 authors and their work are represented this year in Words Alive’s annual fundraiser. I have to admit I’m fangeeking out a bit to be in such awesome company. Check them all out at the link below.
…”these kids learn younger than their peers that life means doing hard things.“
Some people become experts because they study their subjects, while others do so because of their lived experience. Don Winn comes by his expertise in dyslexia for both reasons.
I met Don when he contacted me for an interview about The Invisible Toolbox. Around this time he gifted me with a copy of his own book Raising a Child with Dyslexia. This clearly written, well researched parenting guide actually includes wonderful advice for all parents. But stories about his own struggles with dyslexia as a child piqued my curiosity as a teacher and made me want to understand more. How does someone whose needs were so painfully overlooked as a child—both emotionally and academically—manage to overcome them?
Don personifies the idea that it’s never too late to parent yourself. With the help of a few mentors along the way, he has not only faced the reality of his own learning and functioning differences, but has also become an inspiration and source of extraordinary knowledge, through his writing and speaking, for parents and children who deal with dyslexia.
In our conversation, you’ll learn about one of Don’s earliest mentors who he believes was the reason he was able to persevere through his dark days in elementary school. His grandmother who read to him filled his invisible toolbox with the understanding that reading and the wonderful closeness that comes from sharing books is worth the struggle. And so, Don Winn never gave up and gained what he believes is the superpower every dyslexic child has the potential to learn.
About Don Winn:
Don M. Winn is the award-winning children’s fiction author of the Sir Kaye the Boy Knight series of children’s chapter books and the Cardboard Box Adventures collection of thirteen picture books as well as the nonfiction book for parents and educators Raising a Child with Dyslexia: What Every Parent Needs to Know. As a dyslexia advocate and a dyslexic himself, he is fully committed to helping reluctant and struggling readers learn to love to read. Don frequently addresses parents and educators on how to maximize the value of shared reading time and how to help dyslexic and other struggling readers to learn to love to read. He’s published articles about dyslexia and reading in MD Monthly, the Costco Connection Magazine, TODAY Parenting, Fostering Families Today, and many others.
Can you explain what dyslexia is? Most of us think it has something to do with the reversal of letters that makes reading difficult. Is there more to it than that?
Oh, there’s so much more to it than that! Although first medically documented about 130 years ago, there are still a lot of misconceptions about dyslexia.
Dyslexia occurs when the brain develops and functions differently. It’s a neurological difficulty with decoding the written word, not an intelligence issue. The written word is a code that requires the brain to match seemingly meaningless marks on a page with the sounds we’ve heard from birth, and not all brains are structured or wired to do this effortlessly. Dyslexia is often hereditary, and rarely gets noticed until a child enters school and begins to struggle with literacy.
Experts estimate that approximately ten percent of the population is dyslexic. Most of these people never get diagnosed. Dyslexia can sometimes be difficult to diagnose because it varies so widely from person to person and can affect a broad spectrum of abilities. To complicate matters, dyslexia is actually a family of sibling conditions, and a person may experience any or all of the following conditions:
Dyscalculia: Trouble with math, numbers, sequencing, sense of direction, and time management.
Dysgraphia: Illegible handwriting or printing, incompletely written words or letters, poor planning of space when writing (running out of room on the page), strange contortions of body or hand position while writing, difficulty or inability to take notes (which requires thinking, listening, and writing simultaneously).
Dyspraxia of speech: Misspeaking words and/or halting speech. This aspect of dyslexia happens because the brain has problems planning to move the body parts (e.g., lips, jaw, tongue) needed for speech. The child knows what he or she wants to say, but his/her brain has difficulty coordinating the muscle movements necessary to say those words.
Dyspraxia: An issue that involves the whole brain, affecting movement. This can include gross (large) muscle movements and coordination as well as fine motor skills (pen grip, unclear hand dominance, trouble fastening clothes and tying shoes, difficulty writing on the line on paper). Dyspraxia can cause clumsy, accident-prone behavior due to proprioceptive challenges (ability to tell where the body is in space), trouble telling right from left, and erratic, impulsive, or distracted behavior.
All these difficulties are caused by structural brain differences that mean reading, writing, math, spelling, and more will never be automatic. A dyslexic person will never read or perform other affected tasks quickly. No matter how brilliant a dyslexic student may be, these tasks will always be laborious and will generally require extra time to complete.
You’re dyslexic yourself. When were you diagnosed? What was school like for you, and did your experience change after your diagnosis?
First of all, I am severely dyslexic and have three of its sibling conditions—dysgraphia, dyscalculia, and dyspraxia. I went to school in the sixties, when very little was known about dyslexia or how to help dyslexic students. I felt like a normal, happy kid until I entered first grade. But on the first day of first grade, my whole world collapsed into itself, and in the space of a seven-hour school day, everything changed for me. I simply could not figure out how to do the things the teacher asked me to do.
Memorizing the alphabet, that long sequence of 26 unrelated letters, plus their sounds; reading and writing my numbers; holding a pencil the way the teacher wanted me to hold it; following instructions that had multiple steps or those that involved telling my left from my right; and so much more felt impossible even though I was trying my very hardest. My brain struggled to make sense of the fact that everyone else in my class could do these things easily. I didn’t understand why I could not. I felt like a duck out of water—I didn’t belong, and I became very anxious. It was like everyone was moving at a fast-forward speed, and I couldn’t raise my hand and say, “Stop! Slow down! I don’t get this! I can’t keep up!” Deep inside, I knew that day that there was something very wrong with the way my brain worked and things went downhill from there.
Though I didn’t have the words to describe it at the time, I now realize that neither the speed with which information was presented nor the manner in which it was taught were good matches for my processing abilities. I flunked first grade. Partway through first grade (for the second time), a special ed teacher who had taken an extension course on dyslexia recognized my symptoms and suggested that I might be dyslexic.
Once I had the label, the only thing that changed was that I now spent an hour a day with the special ed teacher to work on reading. Unbeknownst to me, my parents, or the teachers in my life, I also had dysgraphia (trouble writing), dyscalculia (trouble with math, numbers, and learning/doing things in sequence), and some dyspraxia (trouble with coordination of muscle movements needed for multiple tasks). None of those issues were ever addressed, and they caused me a lot of stress.
That all sounds incredibly difficult. I imagine that coming to terms with a diagnosis of dyslexia both for oneself and one’s child—and also realizing you didn’t get the support you really needed— had to be quite an emotional journey. Can you tell us about that?
Over the years, the one thing that created the most difficulty for me was the lack of information leading to understanding, accepting, and coping with my dyslexia. My teachers never explained things to me, my parents never had a single discussion with me about what was going on or what we could do about it, and most importantly, there was no one I could talk to about my fears, feelings, and frustrations. About ten years ago, my wife and I made a project to understand dyslexia, learning all we could about current science, teaching methods, genetic involvement, and emotional and educational techniques that can help dyslexics cope with the fallout of their condition.
We took a huge leap forward in our quest at an early screening of the 2012 documentary The Big Picture: Rethinking Dyslexia. I had never before seen such a comprehensive and relatable depiction of all the things I had been struggling with since first grade. Viewing this documentary had a profound impact on both myself and my wife. I finally understood myself in a way I never had before, and now realized that I had a tribe. And although my wife has a background in biochemistry, psychology, and genetics, before viewing the documentary, she was completely unaware of the breadth and scope of the effects of dyslexia.
That must have been hugely comforting. And now you’ve become a powerful advocate for dyslexic children and their parents.
As I started to better understand my own dyslexia and the reasons why I struggled throughout my school years and early adult life, I realized that most of my struggles could have been minimized with a proper understanding of dyslexia, ongoing support, and accommodation.
Just having the label is not enough. It’s a start, but children with dyslexia and their parents need to understand what that label means in terms of life impact. And most importantly, kids need social and emotional support to be able to show up for the hard work of learning and performing academically. Warm, loving, open communication is key. A child must have hope.
Much like the show, What Not To Wear, my life is a version of “How Not To Do Dyslexia.” I don’t want any child to struggle unnecessarily like I did.
When you consider your own and your son’s school experience, what kinds of support have teachers provided that were most helpful?
Really, the only support I ever received was from the special ed teacher in helping me to read. After that, I was basically on my own. I didn’t understand my dyslexia and I didn’t have any social and emotional support or accommodation. My parents’ divorce compounded this situation and then from 5th grade on, it seemed like I was constantly moving and starting at new schools, so my entire early education was anything but positive.
Our son got much better accommodation and help in school. The elementary school he attended was particularly good. It’s amazing what a difference a good counselor makes, and our son’s counselor took a personal interest. He would take the students who were struggling out of class when they were particularly stressed, and they all went outside and built birdhouses. It was a great way to defuse an escalating stress response, get centered, and recharge their batteries for the next educational task.
Does dealing with dyslexia get easier as an adult? How does it continue to affect you?
Accommodation and social and emotional support for dyslexia are just as important for an adult. Every task takes more time and that’s something that never changes. So planning my day, trying to minimize unexpected demands whenever possible, and good communication with my wife are so important. In fact, one of the most popular articles on my blog is one I co-wrote with my wife, called, “Living With an Adult With Dyslexia.” In that blog, my wife shares what she has learned about what works well for us.
Dyslexia continues to affect me with mental and even physical fatigue. I get lost easily, I struggle to keep track of things, and I face a constant demand for brain bandwidth that sometimes isn’t there when I need it for reading and writing.
In your book you mentioned several famous dyslexic people—Walt Disney, Albert Einstein, Richard Branson, Leonardo da Vinci. How often does giftedness occur with dyslexia? Do dyslexics have any special inherent advantages or creative powers because of their learning differences?
Dyslexics have definite strengths, like seeing the big picture and outside-the-box thinking. They may also be very good at pattern recognition and spatial reasoning. However, every child is different and not all dyslexics have the same abilities. Some dyslexics may be gifted in special ways, but all dyslexics have the ability to develop great tenacity and grit. In fact, they have to. Because every required task demands exponentially more effort for a person with dyslexia than for a non-dyslexic, these kids learn younger than their peers that life means doing hard things. To me, this is the real superpower of dyslexia.
For example, my dyslexic grandniece wanted to enroll in a high school program that would allow her to graduate with an associate’s degree. In order to do this, she had to pass a test. It required several hours to take this test. But she really wanted to get into that program, and so she worked hard and took the test 9 times before she qualified. That’s the kind of grit I’m talking about. I’m so proud of her!
I just finished reading your book and so appreciated the way you slipped in stories from your own journey with dyslexia along with so much helpful information and advice on parenting dyslexic children. Your grandmother had a positive impact on you. Can you tell us about that?
Thank you! My paternal grandmother was the only person in my family who read to me. While we didn’t get to spend time together often, when I did get to sit in her lap and share books with her, I felt safe and loved. She read slowly and asked me lots of questions to help me think about what we were reading together. I didn’t feel stupid with her like I did at other times when faced with reading. There was never any pressure, only fun. And she was actually interested in hearing what I thought! As a result of those interactions, there was a tiny place in my brain that linked reading with pleasure, and most importantly, with meaningful human connection. That little ray of hope helped sustain me as I persevered year after year with my difficult reading tasks. To this day, the time I spent with my grandmother is one of my fondest memories.
Your grandmother gave you a powerful gift. What does your story about your grandmother have to say to us about what every child needs from a loving adult in their lives?
It’s not just about learning to read. Children need to feel loved and safe, and shared reading is the perfect format for creating that bond. During shared reading, a child feels loved, feels the benefits of enjoying a parent’s (or other person’s) complete attention, and feels seen and heard. An adult who chooses to spend time reading to a child says by their actions, “You matter to me. You are valuable. I want to spend time with you. I’m interested in your feelings and thoughts.” Nothing is more deeply nourishing to the soul of a young child, and a parent cannot go wrong by focusing on this important pursuit.
What’s your best piece of advice for any parent who is concerned that their child may have a learning issue?
Thankfully, there are early warning signs that savvy parents can watch for, starting in infancy. Some tests can provide diagnostically accurate results for children as young as eighteen months of age. I provide a comprehensive list of current testing methods, broken down by age group and diagnostic focus in my book, Raising a Child with Dyslexia: What Every Parent Needs to Know.
Additionally, all my dyslexia articles I’ve blogged about are available here: https://donwinn.blog/dyslexia-articles/. Educating yourself about dyslexia and the many ways it can show up is important. Discovering ways to provide ongoing social and emotional support and accommodation will optimize your child’s potential.
My biggest recommendation to all parents: read to your child from infancy on. Start now. Start where you are. You’ll be glad you did.
Where can parents and educators learn more about dyslexia and how can they connect with you?
My book, Raising a Child with Dyslexia: What Every Parent Needs to Know, offers a comprehensive approach to dealing with the challenges of dyslexia in the family and at school. Understanding the importance of early detection, testing, working with a child’s school, investigating possible behavioral issues, appreciating the role of social and emotional learning, recognizing the strengths of dyslexia, embracing advocacy, and much more is covered in this user-friendly guidebook. While the writing took me many months to complete, this book has been in the works for over 53 years—ever since I became aware of my own dyslexia and the needs it presents.
I’ve often wondered how my life and the lives of other dyslexics who did not receive adequate accommodation, support, and understanding would be different had we all gotten the help we needed during our most formative years. With the knowledge that’s available now, there is no reason why any child with dyslexia needs to experience this level of hardship ever again.
My website/blog is https://donwinn.com/, and you’ll find lots of information about my books and resources for teachers and parents there.
All of my children’s chapter books are available in softcover, hardcover, eBook, and audio and my picture books are available in softcover, hardcover, and eBook formats. Visit my Amazon author page for more information.
Did you know that The Invisible Toolbox is available on audio too? It’s not only a quick read, it’s a fast listen, too, at just two hours. Here’s what Adrian, the youth services librarian at the Westmont Public Library, has to say about it:
“You may have heard that it’s important to read aloud to your child from birth, but you may not have heard why…”
The Invisible Toolbox: The Power of Reading to Your Child from Birth to Adolescence is available on audio as well as paperback through these links:
Why Oprah’s early life of poverty, neglect, and abuse wasn’t the final word…
She’s one of the wealthiest, most powerful women in the world. She has excelled in every form of media. Her stamp of approval on anything in almost any sphere influences thousands. Maybe millions.
But when you consider her early years, the trajectory of Oprah’s extraordinary life is not one anyone would ever have predicted. Here are the facts:
She was born a black child to an impoverished unmarried teenage mother in the deep south in 1954
Oprah’s spent her earliest year living with her maternal grandmother Hattie Mae who taught her to read by age three, took her to church, and believed in ‘spare the rod and spoil the child.’ “Oprah was beaten almost daily.” (Krohn, Katherine E, “Oprah Winfrey: Global Media Leader,” USA Today)
Because they were so poor, she wore potato sacks for dresses and was made fun of
At age six Oprah went to live with her mother whose work as a maid left little time for her
An uncle molested her when she was nine years old.
At 14, Oprah ran away from home, became pregnant, and had a son who died shortly after birth
There’s scant reason to believe that a person with a background such as Oprah’s could overcome it and become not only functional, but an extraordinary success story.
So, what happened?
Although she had stayed with him intermittently in her younger years, as a teen Oprah went to live permanently with her father Vernon who was instrumental in helping her turn her life around. For the first time, she had consistent structure and encouragement. According to Oprah,
“…every single week of my life I lived with them I had to read library books and that was the beginning of my book club. Who knew? I was reading books and had to do book reports in my own house. Now, at 9 years old, nobody wants to have to do book reports in addition to what the school is asking you to do, but my father’s insistence that education was the open door to freedom is what allows me to stand here today a free woman.”
Unquestionably, Oprah exhibited innate intelligence and verbal gifts as a child—she learned to read by age three and her grandmother recalled her playing at interviewing her corncob doll. But the combination of loving discipline and bi-monthly trips to the library was the catalyst that changed her world. “We would go to the library and would draw books every two weeks. I would take out five books, and I would have a little reading time every day.” In high school, Oprah became an honors student and was voted Most Popular Girl. Her transformation had begun.
Poverty, neglect, and abuse are part of Oprah’s story, but they don’t define her now. Falling in love with books became the key that unlocked her intelligence, her innate verbal and empathetic gifts, and her ability to imagine a different life for herself. Reading opened new worlds for her and empowered Oprah to move out, little by little, into a life beyond the limitations and suffering of her childhood.
Reading for Life: Oprah Winfrey,” American Libraries Magazine, May 25, 2011
“A Childhood Biography of Oprah Winfrey,” Blackfacts.com
If your family is feeling anxious and adrift in these uncertain times, a nightly read-aloud ritual can bring enormous comfort, not only to your children, but to you too.
Excerpt from The Invisible Toolbox: The Power of Reading to Your Child from Birth to Adolescence
“Reading aloud nurtures the parent-child connection. When reading aloud is part of a daily family routine it provides a steady point of connection both parent and child can look forward to and count on. Practicing this daily ritual communicates not only that reading is important, but that the child is important. Snuggling and cuddling up together with a book creates feelings of warmth and can even provide a bit of an oasis from daily pressures and burdens.
Our daily ritual was such a source of comfort and security for him that even the novelty of having overnight company paled next to this important routine.
My son’s father and I divorced when he was quite young and our nightly story-time ritual meant a great deal to us both during those difficult days. One winter evening an old friend of mine from high school was visiting from out of town. After dinner and his bath my son, who was about five, trotted downstairs in his footed blue pjs, a book tucked under his arm. He marched right over to my friend who had settled into a rocking chair by the fire, and politely instructed her that she would have to move. A bit startled, she asked why.
“Because my mom and I have to toast our toes by the fire,” he answered matter-of-factly.
‘Toasting our toes by the fire’ was code for our nightly ritual of snuggling up in the rocker by the fireplace and reading together. My son was not about to let anything or anyone interfere with this. Our daily ritual was such a source of comfort and security for him that even the novelty of having overnight company paled next to this important routine. The warmth and closeness of cuddling together with a book at the end of a long day meant just as much to me….”
When I met my newborn book for the first time, it wasn’t love at first sight. I held the tiny tome* in my hand, eyeing it critically, wondering what people would think. Couldn’t she write a book with more pages? Would they think it lacked substance?
A smallish gift book was what I’d planned all along, a volume so not intimidating and so visually appealing that even the most reluctant parent reader would consider picking it up. But when my agent and I met with my editor and the company’s CEO last month via Zoom and learned that Mango had reversed their earlier decision and now planned to print The Invisible Toolbox in soft cover instead of hard, my heart dropped. I was not only disappointed; I was worried. Would a softcover gift book have the same appeal as hardcover?
Mango’s marketing department was concerned that titles comparable to mine were priced at a rate with which a hardcover book wouldn’t be able to compete. Like a wounded parent, I protested: But my book is unique!There isn’t anything out there quite like it. They weren’t moved. And so the decision was made. It was out of my hands.
“I wasn’t sure I could sell it. But then I couldn’t resist.”
When Federal Express left a carton of complimentary author copies on my doorstep this week, I called my agent. “It’s so little.”
She laughed. “Remember, I almost didn’t sign you because the book is so small. I wasn’t sure I could sell it. But then I couldn’t resist.” Julia believes in the message and understands what’s at stake. For her, it’s all about saving democracy. Maybe you’ve seen the meme: A child who reads will be an adult who thinks.
Thank you, Julia, for blowing away any lingering wisps of self-doubt. The Invisible Toolbox may be small. And it may even have a softcover. But its message is mighty.
* An oxymoron, I know, but I like the alliteration.
Dolly Parton’s organization is doing amazing work promoting literacy. Her foundation has donated over a million books to children from birth to age five throughout the U.S., Canada, Australia, and the U.K. I couldn’t be prouder that THE INVISIBLE TOOLBOX has the endorsement of Jeff Conyers, the president of Dolly Parton’s Imagination Library.
Here’s what Jeff had to say after reading The Invisible Toolbox:
“The Invisible Toolbox shares a simple truth that rises above the flood of information parents are subjected to: ‘Reading aloud to your child from birth is one of the greatest gifts a parent can give.’ This book will tell you why and what you can do to develop a lifelong love of books and reading with your child.”